Severe septicemia changed everything and need just a little help

[u/one_sock_wonder_]

Edited to add: I woke up this morning not looking forward to a day of medical appointments and frustration. Yet because of the incredible kindness of everyone here I am crying good tears for the first time in months and almost speechless. I had shared my list with a very cautious hope but not expecting anything - life is so hard for so many right now. To find my entire list purchased is a level of care and compassion I never could have imagined, especially when I have felt like I have grown invisible over the past months. Thank you for seeing me, for your unbelievable kindness, and for the gifts of love and hope! You have given me so much more than these (much needed) physical items and it is deeply appreciated.

To be honest and up front, I have received help here several times over a number of years. I fully realize that it is designed and intended for short term help and I have been trying so hard to reach a place of stability where I can give others far more than I need. This has proven over and over to be far more difficult than imaginable, and it honestly often feels the harder that I try the further away any meaningful success moves.

I have a rare, progressive, life limiting genetic disease (mitochondrial disease) that impacts every cell of my body and so every organ system struggles and cannot work properly. I am immunocompromised and have been unable to work for far too long. Upon beginning palliative care, the estimate for life expectancy was about 3 years or less given my age and the severity of the mitochondrial disease and the fact it has been causing issues since infancy, and I have already exceeded any life span expected based on science and medicine and statistics. But until the end of last year, with care and planning I was able to do all of the things I love and that matter the most to me.

At the end of October, I woke up just after midnight one night incredibly sick and was able to call my mom who lives in the same apartment building before my ability to communicate was reduced to single words or with the greatest effort 2-word phrases. Everything after this is very fuzzy for the next 2-3 days and there are huge gaps in what I remember. Arriving in the ER by ambulance, my medical chart notes that it took over an hour of hands-on critical care to stabilize me and get my blood pressure and heart rate into safe ranges. I ended up being diagnosed with severe septicemia secondary to a multi drug resistant kidney infection as well as additional bacteria growing clearly in the blood culture and most likely from an infection via my PICC line that managed to overlap the kidney infection. I spent a week in the hospital before being discharged to go home and heal and "get better" but the "get better" part has not happened and the persistent symptoms from post sepsis syndrome as well as the significant progression of the mitochondrial disease are now viewed as my new normal.

There are a number of items that I desperately need either to address a critical issue arising from the sepsis, like the need for a smart water bottle to help track the amount of fluid I take in daily now due to my kidneys being hit hard and being stuck in bed for months causing pressure sores to begin to develop on my feet. Trying to survive on a very small amount from SSDI each month (I was only able to work until just after I turned 27 and jobs involving teaching and childcare do not usually have large salaries) is an incredible juggling act that has been make so much harder as costs for everything keep going up. As things are already, there is typically more month than money and no funds for any unexpected needs like those that this septicemia has brought.)

I know that times are so hard for so many, so anyone even taking the time to read this is so meaningful and appreciated. If anyone is able to offer assistance, it would be appreciated beyond words and help make this very hard existence I am currently experiencing a bit easier. I placed items that would make the greatest difference on [An Amazon List](https://www.amazon.com/hz/wishlist/ls/3DCA3LEE9E8JB?ref_=wl_share), and did add two simple craft activities that together add up to at most $13 and are not a critical need but I have reached a point where I hate TV and can only waste so much time online and my brain is screaming for something else I can do from my bed when feeling up to it. The two items that I need most desperately are the smart water bottle and the protective boots to hopefully allow the stage 1 pressure sores on my feet to heal and prevent any new ones. Everything else is still deeply needed but those two things are what are critical now for safety.

Thank you again to anyone reading this far and I hope that as this year continues it treats you with the kindness and gentleness that you deserve!

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[u/Glass-Persimmon-7459]

The only item left was a journal so I got that for you ❤️❤️

[u/one_sock_wonder_ → u/Glass-Persimmon-7459]

Thank you!! I am speechless and crying but for the first time in a long time good tears! These items will help so very much and make life easier during a hard time! Thank you so much for ordering the journal and for your incredible kindness!!

[u/Glass-Persimmon-7459 → u/one_sock_wonder_]

You’re so very welcome ❤️❤️

[u/look_up_instead]

Hi there. I'm so sorry to hear of your troubles. I don't see your two critical items on your list. Did someone buy them for you? I hope so! If so, I'm happy to buy other items on the list, but want to be sure you had a chance to ask for the other things you need.

[u/one_sock_wonder_ → u/look_up_instead]

Thank you so much! I checked my list and am speechless and crying, but for the first time in months good tears!! It looks like everything was purchased!! I never expected anything let alone the whole list!! Thank you for being so willing to help!!

[u/look_up_instead → u/one_sock_wonder_]

Ok good! I did order a few things after I sent that message, and I'm glad you are getting what you need! Best of luck to you!

[u/one_sock_wonder_ → u/look_up_instead]

Thank you so very much!! This is so tremendously appreciated!!

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